Sep.26, 2008: Rep. Ryan Praises Passage of Pre- and Post-natally Diagnosed Conditions Awareness Act
Bill Passes House and Senate and goes to the President’s Desk
(Washington, D.C.) Congressman Tim Ryan—the lead Democratic cosponsor of the Prenatally and Postnatally Diagnosed Conditions Awareness Act—praised Congressional passage of the bill’s Senate companion yesterday.
The bill provides resources to women whose born or unborn child receives a diagnosis for Down Syndrome, Spina Bifida, Cystic Fibrosis, or other prenatally and postnatally diagnosed conditions. The bill will make sure that women receive up-to-date scientific information about life expectancy, intellectual and functional development, prenatal and postnatal treatment options, and referrals to supportive services such as hotlines, websites, information clearinghouses, and parent support networks and programs.
“As much as 90% of pregnancies with a diagnosis of Down Syndrome are aborted. This should not and need not be the case. We will bring every resource to bear to ensure that women are able to raise a child with the best information and the best services available,” said Congressman Ryan. "A pregnant woman should never feel that her options are limited by a lack of public support for the types of social services that could help her, her family and her baby.”
Other provisions of the bill would include identifying the number of cases recognized through prenatal testing, and requires written consent for data collection and any information that could identify the patient. The bill also calls on the Secretary of Health and Human Services to develop guidelines for health care providers involved in prenatal testing on how to deliver the information to their patients and protect their confidentiality.
“This is common ground legislation that will benefit both women and children. We must do more to get women the support they need—and this bill is crucial step in that direction,” added Congressman Ryan.